Although the anonymous data allows those running health and care services to better understand how health is changing, the best ways to plan services, etc, the longer term aim is to use the linked data set to identify individuals who would benefit from a particular service or treatment thus improving their overall health and their quality of life. Clinicians, such as GPs, and care givers (with relevant security protection) would be able to identify individual patients, so that their care can be better tailored to their personal needs and circumstances, and bring those improvements to their quality of life and their health outcomes. This would require the inclusion of other data items in the dataset such as your date of birth.
“The GP feedback section should end on We are already using it to help us design services around people living with multiple long term conditions and there are many other exciting areas to be explored.”
The Cornwall and Isles of Scilly linked data set will be held according to strict security rules governing how data is stored and managed in the UK. These rules comply with data protection law and NHS guidance on managing health and care data.
Health or social care providers engaged in the delivery of care in Cornwall and Isles of Scilly will never knowingly or unknowingly share your information without there being a legal basis to do so; this includes selling your data to external organisations.
We will on occasion contract for an external organisation to help us with analysis of activity but this is done in a controlled way, the data remains the property of the providing organisation.
We never sell your data, your personal data can only be accessed by those with a legitimate purpose for doing so.
Your individual care will not be affected if you opt out.
Confidential patient information is used to improve health, care and services across the NHS, for example for monitoring patient safety, developing new treatments or planning NHS services. Having data about as many people as possible ensures that NHS can make the best possible decisions. For example, if lots of people from a particular age group, ethnic minority or local area opt-out, then that group will not be represented in research findings. You can find out more at https://understandingpatientdata.org.uk/news/national-data-opt-out-impact